The Future is in Sight
Our Mission
Our mission is to eliminate Keratoconus (KC) as a health issue. We attempt this through our Global Network which is totally patient-led. Our belief is that it is only through the open, free exchange of ideas that change can really be brought about. It is our hope that the support network will "take on a life of its own" and, therefore, be able to point us to the answers. Great strides have already been made by many of our members; you are most welcome to join the team.
If you sincerely care about helping patients succeed and working hard with the best and brightest people, we'll welcome you on-board. We're connected.
First
is the beginning.
First
kicks open the door and possibilities follow.
First
resets everything.
First
moves us forward, fast. We all want first.
First
isn’t later, it’s now.
What
will you do first for KC Freedom ?
Be first to live your life on your terms !
Everything we do for patients, we do with patients
In the same way we wish to be treated every step of the way
International Experience Exchange |
Our international
experience exchange with patients is a truly patient-led community with over 2800
patient representatives determined to achieve this purpose. It strives for
patients to take a seat at the table with all stakeholders and have an equal
voice in the healthcare ecosystem and in the decision-making.
Our advocacy
leading care is literally healing health-care and offers a unique opportunity
to come together as a global community to exchange experiences, find
inspiration, and leave with practical, meaningful, and actionable ideas to
improve the lives of patients and their families.
All Together Better |
Our original mission was focused on reducing the need for young people with Keratoconus to undergo invasive surgical procedures.
This mission has now been substantially accomplished; thanks to our society more patients are finding information on cornea-sparing treatments soon after they are diagnosed.
Our pursuit of excellence in Safety, Quality and Teamwork in research, education, and support for our fellow members - our mission was then accomplished for everyone.
Dating back to its origins more than two decade ago, when a progressive movement immersed in modern day Keratoconus patient and professional research started converging together for the first ever time in history, which continued to form the Global Keratoconus Foundation. An unifying alliance formation which since 2001 has been the response to there being absolutely no information or mis-information on the unprecedented eye condition which we really unequivocally knew about called Keratoconus ('KC'), and also due to not having no support available to make informed choices
Since then, in a great variety of roles around the world, a wider International rescue is taking place on a global-scale, and with it comes a new force for humanity and hope. Likewise, if you are skilled and passionate, we’d like to add your energy to ours.
At any given moment, on any given day, all around the world, our members are restlessly and effectively working for the sake of the most vulnerable among us - to restore and renew hope, dignity and freedom.
In 2004 as an alliance which uniquely represents, serves and protects all those who come to its ranks with a reach of having a global force in populace elected fellowship, mobilized to create - KC Freedom™ - to pool together every known fact about Keratoconus in to one place, so that we could “join up the dot’s” internationally. This was a great success as it increased our members (both patients and professionals) knowledge so we could tackle this Keratoconus menace together more effectively then ever.
This helped members of the society to be the first to save and get their vision back with the use of modern, technically advanced, less invasive treatment options by utilizing the support network we had created in the wake of this investigation.
Systematic investigation to establish facts and principles, and to collect information on Keratoconus came from only our independent organization. It's where the strategy – the least invasive comes first – originates from with regards to treatment options. This vision strategy has become global, leading us to become a standard bearer across the community's boarders. This saved and restored, in the least way possible our members sight, and more than that, it paved way to gave patients everywhere even more customized and personalized options than it could had ever have been imagined.
We have members who was the first to be out of the "Keratoconus hell" they where in after thoroughly researching every option they did not know they had, with them now having stable permanent vision through a least invasive way which they was more comfortable with. We have countless many who are now enjoying vision which they could not have dreamed about before, when before they met us they only had more invasive treatments to fall back on.
Our pioneering spirit helped to “explode” the interest in these much needed less invasive treatments. We turned it around whereby these treatments are now global, and also at the same time exposed the truth about Keratoconus.In regards of all the patients who seek laser eye surgery at laser vision clinics, it's generally known that around one in 50 has Keratoconus. The level of testing sophistication and testing regime supremacy used at laser eye surgery clinics are routinely much higher than at of a contact lens practice. Introductorily, this discrepancy in it self shows that there is an underlying unimageable undocumented incidence in the general population (current estimated global prevalence in the general population is approximately 1 in 375 to 1 in 2000 individuals, depending on the testing used [1][2][3]), and they are not aware of the life changing impact that can happen and of which can be avoided through timely and accurate screening and detection.
Going from strength to strength, the incorporated society of the Global Keratoconus Foundation advanced an unique global alliance of experts representing patients of all nationalities across all stages of vision and promoting patient-centred healthcare around the world.
Our Scientific Governing Directive Constitutes & Precedents are composed from and of expert patients and professionals who where the first to put together the largest research ever to be conducted on and for Keratoconus preventive, corrective and restorative innovations, with the Research & Development resulting in finally an actual treatment for Keratoconus when there was nothing before.
The end outcome to the accumulated consequential net force being, our society having the first to have members who have their vision saved without the need for invasive 'treatments', and the chilling drawbacks with them, which our members did not want.Our members are International patients and professionals working at international, regional, national and local levels to represent and support the Keratoconus community to accomplish our mission.
Our achievements: Our International Networking Partners have contributed greatly to our Keratoconus community’s right to live with out fear for their vision. Through the teamwork of these partners our society continues implementing best practices through out the world. These programs have been cited for their high-quality of care that produces consistent, positive and sustainable outcomes.